With the rise of precision medicine, more patients and health care consumers will require access to information about genetics that they can understand, and health information professionals will need to take steps to improve consumers’ ability to understand how their genetic information can be used in their treatment. The webinar will provide participants with guidelines and tools for creating and evaluating consumer health materials and equip them with a concrete understanding of how to apply health literacy and learning style principles in the creation and communication of consumer-friendly precision medicine information. Hospital and academic librarians will gain the practical knowledge needed to help patients and health care consumers better understand precision medicine and help researchers communicate their findings to a lay audience. The websites and tools introduced during the webinar will be immediately very useful to all attendees. #mlaprecisionmed17
*This webinar can be applied toward the MLA Consumer Health Information Specialization.
Discuss the use of best health literacy practices to enhance patients’ and health care consumers’ understanding of precision medicine concepts relevant to their care.
Gain familiarity with guidelines and tools for creating and evaluating consumer health materials.
Learn how to apply health literacy and learning style principles to create patient-friendly information about precision medicine.
Presenters and Content Developers
The Center for Knowledge Management (CKM), Vanderbilt University Medical Center, team includes:
Helen Naylor leverages her expertise in biochemistry and protein crystallography to aid in the interpretation of the consequences of genetic mutations as they relate to protein function, structure, and/or expression in the context of pharmaceuticals and disease. In her work, Naylor provides comprehensive summaries of genetic information for institutional precision medicine initiatives and for the translation of genetic information for patients.
Sheila V. Kusnoor, with a doctorate and postdoctoral training in neuroscience, has been an integral member of the CKM research team, evaluating the use of health literacy and learning styles to enhance patient education. As part of CKM’s health and genetic literacy research, she contributed to developing knowledge pearl videos to provide lay-level explanations of genetic cancer medicine terminology and to translate professional-level genetic information text into a consumer-friendly format.
Zachary E. Fox, associate director for information services, has been involved in a variety of knowledge management initiatives. Most recently, he has been one of the key members of the team aiding with the provision of evidence for an array of the institution’s health information systems. For the past three years Mr. Fox has served on the Medical Center’s Institutional Review Board. Through this work in research oversight and human subjects’ protection he has developed a keen awareness of the need for researchers to clearly communicate health science research to potential study participants, and on an as-needed basis, collaborates with the Center for Knowledge Management’s patient communication team.
Nunzia Bettinsoli Giuse, FMLA,- professor of biomedical informatics, vice president of knowledge management, and director of the CKM has over the course of her career pioneered research and innovative practices in multiple areas of informatics, information science, and knowledge management. Giuse’s extensive expertise includes knowledge around leveraging both health literacy and learning style preferences to create patient health communication models for complex health and genetic information, for which she was awarded two federally funded grants between 2010 and 2015.
- Acknowledgements to Taneya Y. Koonce, MLS, MPH for her contributions to webinar content development.